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Suhas Subramanyam leads push for PSP, CBD awareness month

The bipartisan measure seeks to boost public awareness and research support for two rare neurodegenerative diseases affecting thousands of Americans.

Virginia State Senator Suhas Subramanyam / Image- Wikipedia

Congressman Suhas Subramanyam introduced a bipartisan resolution to designate May as Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD) Awareness Month, seeking to raise awareness about the rare neurodegenerative diseases.

The resolution, introduced alongside Senator Richard Blumenthal, has received support from 25 House co-sponsors. Subramanyam also spoke about the measure on the House floor earlier this week.

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“PSP is a heartbreaking condition that impacts thousands of Americans, including my dear friend and mentor Congresswoman Wexton. We must support vital research into PSP and CBD so that we can get answers for patients and ultimately find a cure. One way to make sure that happens is to bring awareness to this neurodegenerative disease and our resolution does just that,” Subramanyam said.

The resolution continues advocacy efforts linked to former Congresswoman Jennifer Wexton, who publicly disclosed her PSP diagnosis in 2023 and became one of the most prominent public figures raising awareness about the disease.

PSP is a progressive neurological disorder caused by a harmful build-up of tau protein in the brain, affecting speech, balance, coordination and eye movement. According to advocacy groups, most patients become dependent on care within three to four years of diagnosis. There are currently no disease-modifying treatments or a cure for PSP.

Subramanyam’s resolution seeks to increase public recognition of PSP and CBD, encourage federal support for research and improve access to care for patients and caregivers. Advocates say PSP affects more than 30,000 Americans and is believed to be as common as ALS, though it receives significantly less public recognition and research funding.

Blumenthal said the resolution also recognizes patients, caregivers and healthcare professionals working to combat the diseases.

“This resolution honors not only the brave individuals living with Progressive Supranuclear Palsy and Corticobasal Degeneration but also their caregivers and the medical professionals working to prevent, treat, and ultimately cure these diseases,” he said.

Jessica Shurer, director of Clinical Affairs and Advocacy at CurePSP, said the resolution builds on momentum created by Wexton’s advocacy.

“Having a House PSP Awareness Resolution for a third year in a row is a testament to the movement that Rep. Jennifer Wexton started, and adding CBD to it this year is an opportunity to shed light on a closely related but even rarer disease,” Shurer said.

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