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IndoUSrare advances global partnerships ahead of Virginia summit
The nonprofit, which connects rare disease stakeholders across the United States, and India said its initiatives are designed to keep momentum in diagnostics, clinical trials, and access to therapies.
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Bhavana P - Sat, 13, Sep 2025
- 16:46 EDT
- 15
Representative image / IndoUSrare
The Indo-US Organization for Rare Diseases (IndoUSrare) has announced a series of cross-border collaborations that are designed to maintain research and patient care in the face of increasing tariffs, supply chain disruptions, and geopolitical tensions.
The effort comes ahead of the Bridging RARE Summit 2025, set for Nov. 2–4 at George Mason University’s Hylton Performing Arts Center in Manassas, Virginia.
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Pre-summit workstreams include patient navigation across jurisdictions, networks of clinicians and trial sites, regulatory and ethics roundtables, virtual trial enablement, and therapy access strategies. IndoUSrare said these priorities are intended to deliver practical near-term results while laying the foundation for long-term global infrastructure in rare disease care.
IndoUSrare founder and executive chair, Harsha K. Rajasimha, said the group is focused on “quiet collaboration” at a time of global uncertainty. “Tariffs and tensions make headlines; patients can’t wait! Our community is choosing focus over fear to reduce time to diagnosis, de-risk trials, and sustain access to care,” Rajasimha said.
The summit will feature keynote speakers including John F. Crowley, president and CEO of the Biotechnology Industry Organization, and Vijay Kumar, acting director of the U.S. FDA’s Office of Therapeutic Products.
Panels will also bring together senior leaders from the NIH, Indian Council for Medical Research, and AIIMS, alongside industry executives and patient advocacy leaders. Highlights include the Pitch4Rare contest, the Bridging RARE Awards Gala, and presentations from IndoUSrare’s working groups on U.S.-India-EU collaborations.
2025 Bridging RARE Summit poster / IndoUSrare
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