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Anita Bhatia Foundation commits $500K to rare disease research
The grant will support research into TSC, a disorder that can cause non-cancerous tumors to develop in major organs, including the brain, kidneys, heart, lungs and skin.
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Malvika Choudhary - Sat, 28, Mar 2026
- 16:50 EDT
- 31
Anita Bhatia / LinkedIn
The Anita Bhatia Foundation for Tomorrow, a US-based philanthropic organization, committed $500,000 over three years to support research and clinical care for tuberous sclerosis complex, a rare genetic disorder, through a partnership with the TSC Alliance.
According to a press release, the investment will support the 2026 International TSC (Tuberous Sclerosis Complex) Clinical Consensus Conference and the research priorities of Anya’s Accelerator through 2028, with a focus on TSC-Associated Neuropsychiatric Disorders (TAND), a range of cognitive, behavioral and psychiatric conditions associated with TSC.
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Additionally, the funding will help support updates to the International TSC Diagnostic Criteria, Surveillance, and Management Recommendations, while also backing efforts to establish a Core Outcome Measure Set to standardize how clinicians assess and track TAND symptoms, particularly in clinical studies and trials.
In addition, the TSC Alliance said the funding will support the collection and testing of patient samples and neuropsychiatric data to help identify and validate a blood-based biomarker panel for TAND diagnosis and progression.
“Through our continued support of Anya’s Accelerator and the TSC Alliance, the Anita Bhatia Foundation for Tomorrow is investing in what TSC families need most: answers grounded in truth, science, and data,” said Anita Bhatia, executive director of the Anita Bhatia Foundation for Tomorrow.
“This investment reflects our commitment to accelerating discovery, strengthening hope, and ensuring that every family affected by TSC has access to knowledge, treatments, and a future shaped by scientific evidence—not fear,” she added.
“TAND continues to be one of the greatest unmet needs in the TSC community, having an outsized impact on quality of life for both the person with the disease and their loved ones,” said Kari Luther Rosbeck, president and chief executive officer of the TSC Alliance.
“We’re grateful to the Anita Bhatia Foundation for Tomorrow for continuing to champion efforts to ensure those with TSC receive the highest quality of care and enabling research that moves us closer to finding answers for families affected by TAND,” Rosbeck said.
The Anita Bhatia Foundation for Tomorrow is named after Anita Bhatia, the daughter of Indian American philanthropists Ramesh and Kalpana Bhatia who established their family foundation in 2006.
Bhatia has served as executive director of the family foundation since 2018. Her previous roles include communications and marketing positions at the American Red Cross, Providence Saint John’s Health Center and Montefiore Medical Center. She holds a Master of Health Administration from the University of Southern California and a Bachelor of Arts in psychology from The University of Texas at Austin.
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